Sunday, March 28, 2010

day +951

So, today marks the beginning of the second week of our spring break. We return to school next Tuesday.

Last week was occupied by medical appointments mostly. On Monday, I had my six-month PET scan; I had an appointment with my ophthalmologist and an infectious disease specialist on the following day; on Wednesday, my dentist replaced two old fillings; and then, I had an appointment with my cardiologist followed by Dr. C-M on Thursday.

All of the appointments went well. My PET scan was clean. NED once again! With regards to the complexion of my face, it looks like the GVHD might be burning out. Dr. C-M said the complexion of my face is much better, which I agree. Signs of GVHD, however, still remain on my penis and even less so, on my lower lip. But in all honesty, the skin discoloration is a minor cosmetic issue. It's not a big deal.

Considering how well I'm doing, he decided to begin to slowly taper the Tacrolimus once again. I had been taking 0.5mg of Tacrolimus twice daily. I've been ordered to continue the twice daily routine except on Wednesdays and Sundays in which case I'll take just one capsule. Dr. C-M also reduced my Folic Acid dosage from 5 to 3 tablets daily and Magnesium Soy Protein dosage from 2 tablets twice daily to 2 tablets daily. The other four medications (Penicillin VK, Acyclovir, Voriconazole, Multivitamin) that I take remain the same for now and I imagine for the foreseeable future.

I was due to receive Tdap (Boostrix) in August, but my immune system responded well enough to the series of Adult Td (tetanus and diptheria) vaccine that I received late last year that Tdap is not needed. Since I'm still on Tacrolimus, the immunosuppressive, my immune function isn't normal but it's holding its own.

On Tuesday, the infectious disease specialist gave me the vaccine for typhoid, which I hadn't received yet. Barring Pneumovax which I'm scheduled to receive next month, I've completed all my base immunizations which is amazing.

Dr. C-M wants me to see him again in mid-June.

So far during this break, I've managed to do a bit of photography. I have a couple of sites lined up for this week that I'd like to visit which should be lots of fun.

Finally, sorry for the blue abyss you see at the top of the page. The server that hosts it is down, but I'm working to find a replacement.

Enjoy the week!

3 Comments:

Comment Anonymous Anonymous said...

Duane,
What wonderful news! I'm so happy for you. What a sweet little word....NED. Take care.

With Love and Hope,

Wendy

7:17 PM  
Comment Blogger Jim Anderson said...

Good news Duane.
I had my last phlebotomy today, the 26th one. Made me realize how much I miss the nurses who had been part of my life for 3 years. These gals were so supportive from my first day at the clinic, getting a blood transfusion 4 short years ago.

12:53 AM  
Comment Blogger Duane said...

Thanks Wendy and Jim! Enjoy the holiday weekend. ;)

7:11 PM  

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