Wednesday, January 28, 2009

a more promising future

I had an interview for a prospective teaching job this morning. While waiting for the administrator in her office, there on the wall were these inspiring, eloquent words by Maya Angelou:

We cannot change the past,
but we can change our attitude toward it.

Uproot guilt
and sow forgiveness.

Tear down arrogance
and seed humility.

Exchange love for hate -

thereby, making
the present comfortable
and the future promising.

Tuesday, January 27, 2009

day +525

Yesterday evening was the second of about eight training sessions to become an adult literacy tutor. So far, the classes are going extremely well. The group of volunteers is a motley bunch. A few are retired, but the majority are working individuals who cover a wide array of professions, ages, and backgrounds. It's impressive.

In addition to attending two sessions each week, we receive homework assignments. I wasn't the only one who joked how it felt like we were back in school.

Speaking of volunteering, someone passed along this interesting NYT article about how during this economic hemorrhage, volunteers can be an amazingly resourceful and revitalizing force for nonprofit organizations.

Sunday, January 18, 2009

it's a beautiful thing

Tuesday is shaping up to be an amazingly wonderful day for America and the world. In talking to family, countless friends, and strangers as well as keeping up with the news, it's clear that despite the country's economic difficulties there's a palpable feeling of optimism and hope in the future. Even people who didn't vote for Obama are acknowledging this hopefulness. Obama isn't going to perform miracles. Serious challenges will remain and I'm sure we'll disagree on some of his decisions, but after a period in which we, the American people, have felt like our voices were marginalized and that power was grossly abused and mismanaged, it seems like we finally have someone in the White House who is listening, eager for our participation, and ready to make positive changes.



It's thrilling to see this injection of vitality in American democracy. To see people of all backgrounds and stripes engaged and united, fearless and ready to work, is a beautiful thing.

I'll be glued to the tube on Inauguration Day.

in the news

Gas Plume On Mars Signals Potential Life

Japan's Outcasts Still Wait for Acceptance

Students Covering Bigger Share of Costs of College

How the Movies Made a President

Obama Staff Will Say cu 18r 2IM

Monday, January 12, 2009

day +510

This morning's checkup went very well. My counts, I was told, are good. At Sloan, apparently after the 12 month scan, protocol (for allo SCT survivors, I assume) says that the next one isn't done until month 18. Consequently, I'll receive my next scan in February.

For the moment, my Tacrolimus level remains at 1.25mg.

Sunday, January 11, 2009

the week that passed and the week ahead



On Friday evening, my sister and I saw Slumdog Millionaire, which has received a lot of praise. We both thought it is a terrifically stirring story of survival, hope, and a celebration of life. The soundtrack too is awesome.

Tomorrow morning I have a checkup with Dr. C-M. My last PET scan was in August, so I think I'm due for one. I'll ask him about this.

Finally, thanks for your very helpful comments and insight regarding what I shared on Friday. I really appreciate your input. Please continue to share your thoughts about this or any other issue that I bring up. It's humbling how this journal has become a virtual community of sorts and although I haven't had the privilege of meeting most of you in person, I feel as if I have. When I see her again this week, I plan to go forward and ask her out. If she accepts, I'll just take it a step at a time and just try to do what feels natural and right.

Friday, January 09, 2009

new situations, new questions

Yesterday's Open House at the ICP went pretty well. I estimate that somewhere around 100 people showed up. The facilities there are top of the line and it seems like a place that has a very engaged and diverse student body. I was impressed.

After going on a tour of the school and then, listening to brief presentations given by faculty members, I had the opportunity for my portfolio to be reviewed. The review lasted for 15-20 minutes. Asked about my work, I told him the story that you're all too familiar with by now: of how about 14 months ago I began photographing the Harlem River Bridges and other interesting sites nearby the waterfront. This project, I told him, had become a journey of exploration and discovery for me. But my response was partly true. I had hedged the story a bit. Due to some sense of embarrassment or stigma, I didn't feel like sharing or going into what has been the spark behind this journey: my cancer experience. My photography of the Harlem River is a product of my cancer experience and I think that when, as in last night's review, I fail to weave the two narratives together I diminish the personal significance that cancer and photography have had in my life. Perhaps in some way too I subdue the courage, humanity, and resourcefulness of my own journey. Long ago, I understood that looking at my images are nice and all, but by themselves they tell only a passage or two of a much richer story.

The instructor liked many of the images. He told me that it was clear that I had an eye for composition and tightness (no unnecessary clutter in the images). He liked that they weren't all of the panoramic, landscape variety. While my portfolio has a healthy number of such images, they are interspersed with intimate shots of flowers, mosaic tiles, street signs, and architectural details. This, he said as I understood long ago, gives my story balance and greater strength. He also seemed to be impressed by the breadth of my portfolio. It was clear to him that I was really serious about this project. Though, of course, because of my reluctance to disclose fully he didn't understand why I was so serious about it. I told him that I think my documentation of the Harlem River is a story that hasn't been told before to which he responded, "Spoken like a true photographer."

I let him know that I felt that I was at the point where I needed a better camera and so, I've been looking to upgrade to a DSLR. He was in complete agreement about this, which I found very reassuring. He said that the difference in the quality of the images will be immediate. My Canon PowerShot A700 has served me amazingly well, but my skills have outgrown it. It is time for a camera that will strengthen my work.

In many ways, my reluctance last night to share the cancer part of my story is strange, since I'm so public about it. There are just times and situations when it feels far easier (and safer) to just not go into it.

The day before I was in another situation in which with regards to disclosure, I chose to not bring up the cancer. This time, however, it has to do with a girl which brings up new questions about which until now I hadn't had to think about. For a few weeks now, I've been participating in projects with someone whom I find attractive. Until this week, however, I hadn't (I don't recall) spoken about "what I do." I told her that I'm looking for employment right now. Back in '07, I graduated from grad school and since then, I said I had been playing the role of Peter Pan and that just when I was beginning to look for a job, the economic crisis started. But I was holding back. I felt defensive . . . restrained. Here was a girl, whom I found attractive and was interested in getting to know, but was concerned that bringing up cancer would perhaps kill the conversation, but moreover, end any real chances of progress. So, I just left out cancer and as a result had this huge gaping whole which I didn't know how to fill quickly. Therefore, I used "playing the role of Peter Pan" as I have done from time to time. I did mention my photography work and listed some of my past jobs, but in the end I feel like I came across as a goalless, underachieving vagrant. I was hide something so monumental from her and as a result, I felt defensive and unauthentic.

Like with the ICP instructor last night, I chose to leave out cancer from the discussion of my background. Though the situations are somewhat different, they raise many of the same questions.

How do I fill up that void? Or should I? Does it depend on whom I'm talking to? I don't want to scare off a prospective love interest by bringing up my cancer experience on day one or two or three or four, so what do I do? Am I just being too careful? Now that I'm meeting more and more new people, these questions are beginning to come up.

I'm sure I'll see her next week. I might not have made the best show, but I don't think my battleship was torpedoed. There's still hope, I think. We talked about the recent renovation of the medieval art section at the Met. I've been thinking about asking her next time if she'd like to check it out with me on Friday.

Thursday, January 08, 2009

cancer news

Young Adults Gather to Battle Cancer reviews the November meeting of the LIVESTRONG Young Adult Alliance in Austin, Texas, where more than 100 leaders of various cancer advocacy groups gathered to focus on ways to improve the lives of this 15-40 age demographic.

lymphoma today

The PDF for the winter issue of the Lymphoma Research Foundation's newsletter, Lymphoma Today, is available now. Beginning on page 4, the article called "Life After Lymphoma" looks at the short and long term needs of survivors and offers some helpful recommendations.

Tuesday, January 06, 2009

day +504

Back on day +59, I blogged briefly about how Ellen Clegg of The Boston Globe interviewed me for her book project about the effects of chemobrain and the search for future cancer therapies that pose less harmful consequences. Kelly of Chemopalooza, who is one of a few friends who were also interviewed by Clegg, informed me yesterday that her book has just been released. It's called ChemoBrain: How Cancer Therapies Can Affect Your Mind.

I haven't had the opportunity to get a copy of it yet, but Kelly, I, and others are cited in the book.

On Thursday evening, I plan to attend an Open House at the International Center of Photography in Midtown. Although I don't have the money to sign up for a course or program right now, as part of the event I will have the opportunity for my portfolio to be reviewed. This should be pretty cool. It would be nice if my work is received warmly.

Finally, I learned in a recent issue of Sky & Telescope that 2009 has been deemed the International Year of Astronomy in honor of Galileo's revolutionary decision to turn his telescope upwards toward the heavens. Events and programs around the country and all over the globe have been organized to educate the public about the wonders of astronomy as well as to celebrate the 400 years of astronomical exploration and discovery since Galileo changed the course of both science and history in 1609.

At the moment, I'm reading a book on the Mahamudra tradition of Buddhist meditation, but before this I was reading about the Mongol Empire, the largest continuous land empire in history. In reviewing periods of Mongol history, I was reminded about one of its most fascinating aspects: the diplomatic and missionary travels between Europe's popes and monarchs and the khans of the Asian steppe. We've all heard about the travels of Marco Polo, but at least two decades before he had set out to meet the great Kubilai Khan, John of Plano de Carpini traveled to the Mongol heartland.

Thinking about how unimaginably rigorous John of Plano's trek through eastern Europe and then, through the length of Asia before reaching his destination in Mongolia must have been in the 1240s, it makes all of my lofty designs for experiencing the dangers, independence, thrills, and challenges of grand travel to seem comical. It's practically impossible for a person in 2009 to understand how tough life was back then, let alone trying to grasp what it was like to undergo trips through unknown lands, such as those of John of Plano and the Polos, that took years to complete. Today travel to most places is pretty straightforward and cushy. Knowing how different travel was for people in the Middle Ages and earlier (such as, Herodotus' exploration of the Nile River and our ancestors' migration from the Rift Valley to every corner of the globe), their willingness to undertake such dangerous trips also speaks to their dedication to whatever belief or cause they espoused. For many, I suspect, they hoped rewards and fame would follow back home too.

What does this exactly have to do with the 2009 International Year of Astronomy? Nothing per se. I just found it fascinating reflecting upon how remarkable is our collective human story of exploration and discovery both before and since the time of Galileo.

Monday, January 05, 2009

answers from the experts

The Leukemia & Lymphoma Society's NYC Chapter is hosting Frequently Asked Question in Lymphoma: Answers from the Experts, a free patient education workshop for survivors, their families, and friends on Wednesday, January 28th from 5:30 - 9:00pm at Baruch College. The scheduled speakers are notable specialists in the field of lymphoma.

For more information or to register, please call 646-660-9031.

hodge blog

Bobbie James

cancer news

Mapping the Journey

in the news

Study: Early to Bed Keeps Heart Healthy

Researchers Unlock Secret of 1918 Flu Pandemic

Tiny Diamonds Support Comet Theory

Report on Columbia Details How Astronauts Died

The Fight Over NASA's Future

'As Night From Day'

This is Home

Colleges Profit as Banks Market Credit Cards to Students