Tuesday, May 12, 2009

seeking opinions about BMT resources

I subscribe to the nbmtLINK's e-mail list and received the following message this afternoon. For those who have had transplants or their caregivers, this may be of interest.


May 12, 2009
Dear BMT Recipients and Caregivers:

The National Bone Marrow Transplant Link, the National Marrow Donor Program's Office of Patient Advocacy, and Evantage Consulting are evaluating how bone marrow transplant recipients and caregivers found information about their disease and transplant. We are conducting this study to learn how best to offer transplant patients and caregivers comprehensive information resources online.
We would like to interview transplant recipients who:
- Are one to two years post transplant
- Are over the age of 18
- Used the internet to find health information

We would like to interview caregivers who:
- Are over the age of 18
- Cared for a transplant recipient who is now one to two years post transplant
- Used the internet to find health information
Each interview will be conducted over the phone, last approximately 60 minutes and will take place between May 25 and June 5 on a day and time convenient for participants.

Interview questions will be about how transplant recipients and caregivers found information about their disease and its possible treatments upon diagnosis.

If you are interested in participating, please provide the following information to Emily Peterson (epeterso@nmdp.org) by Monday, May 18:
- Your name
- Your age
- If you are a transplant recipient or caregiver
- Diagnosis
- Month and year of transplant
- Phone number

Those who are selected will be contacted by phone by Emily from the National Marrow Donor Program OR Elizabeth Sipple from Evantage.

Those who complete an interview will receive a $25.00 Visa gift card.

Thank you for your time and consideration,
Emily Peterson
Senior Resource Development Specialist
National Marrow Donor Program
Office of Patient Advocacy
612-884-8471 or epeterso@nmdp.org

2 Comments:

Comment Anonymous Denise said...

Hi Duane,

Thanks for spreading the word!

9:34 AM  
Comment Blogger Duane said...

It's my pleasure. :)

7:25 PM  

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