Tuesday, October 28, 2008


When people ask me how I'm doing, recently I've found myself describing my situation as status quo but this term belies the reality. There's very little that's status quo about what I've been through and what I continue to face.

Yesterday, just six days after marking 14 months post-transplant, was my monthly checkup at the hospital. My blood count numbers remain strong. The chronic GVHD (cGvHD) is stable. The medications and their dosages remain the same, although I learned that I had been misusing the Dexamethasone rinse. It turns out that I was supposed to swish it in my mouth for about 20 minutes. I had been doing it for only seconds. Thankfully, however, my mouth looks fine. Dr. C-M said the Tacrolimus must have done the job.

My weight continues to fluctuate despite exercising. My feet (in particular the soles) have become more tiresome, achy over the past several days. This is neuropathy, which has been an issue ever since the cGvHD manifested itself during the late summer. But it's tolerable. When they're especially fatigued, I need to just rest. After several hours off my feet, I usually feel much better.

At yesterday's appointment, I received the final dosages of the Hepatitis A and B vaccination series.

Last Thursday, I traveled up to Olana with two friends, one of whom is a SCT survivor. We had a great time going through the Hudson Valley. Church's majestic house is a true gem. Not only is its location overlooking the Hudson River just superb, but the house itself is remarkable. The meticulous detail and worldly richness that went into the creation of Olana is so Church. Anyone familiar with his art will see similar characteristics in his stunning home.

Last week I also attended an orientation session at the adult literacy program, which I mentioned in a recent post. There was a diverse group of about 15 people inquiring about volunteering. Listening to some of the stories told by a 20 year veteran volunteer were sobering indeed. It's amazing how something as seemingly simple (and taken for granted) as proficient literacy is still so remote for many in the U.S. At the same time, there was a great feeling of untapped potential and hope. Volunteering could be very rewarding.


Comment Anonymous Anonymous said...


So glad your appointment went well! You are incredible!

God Bless,

Mindy and Derrick

4:26 AM  
Comment Blogger Kelly Kane said...

Hey Duane -

I'm glad you're appointment went okay this week. You're so insiring with how much you do! I hope you get that part-time gig, and maybe get to do some of the volunteering as well!



2:38 AM  

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