Thursday, May 01, 2008

support the national marrow registry drive

You may recall that late one afternoon during the winter, while I was taking photographs on the approach to the Willis Avenue Bridge, I was stopped by someone in their car who is a reader of my blog. I had the privilege of meeting both her and her daughter at the reception on Monday.

Jeff, her husband, who was diagnosed with Acute Myelogenous Leukemia (AML), received an allogeneic stem cell transplant about nine months ago at Sloan-Kettering. Thankfully, he's doing very well.

Inspired by the amazing, inspirational work of 12 year old Pat Pedraja, Jeff and his family are planning a bone marrow registry drive in Katonah, NY. His wonderful wife asked that I share his message with all of you.

Greetings All,

All-in-all I am one very lucky, very grateful camper. I am uncharacteristically humbled by my incredible good fortune with the medical miracle of stem cell technology and forever indebted to the kindness of my anonymous donor, to the talented medical team at Sloan-Kettering, to the most loving and tenacious wife and children any man could ever hope for, and of course to all of you--who stood by us and gave us the strength and humor and love that shored us up to fight this thing even when many of the doctors had essentially given us up as a lost cause.

This thankfulness has led us to our newest endeavor. We have decided to join forces with an amazing young man, Pat Pedraja, and support his mission of increasing awareness and adding numbers to the National Bone Marrow Registry: Only 20% of people who need a stem cell or bone marrow transplant are able to find a suitable donor match. We want to help change these odds. Registering is easy, and at no cost other than a simple cheek swab and the willingness to participate. Should you be the match for someone in need (think of him or her as your genetic twin), you could truly be a hero by saving a life. To read up on what it means to be a donor, go to We have decided to make Katonah one of the stops on Pat's second national tour. This is a grass roots type drive and Pat and his Mom and his donated RV will be here to help us sign you guys up.

When: May 24th, 2008 10AM - 4PM

Where: Katonah Village Library

26 Bedford Road

Katonah, New York

Who: Essentially anyone in good health between the ages of 18 and 55.

(let's try and encourage our adult kids to participate in this effort)

Refreshments, music and commradery will be in abundance

Donations will be accepted (especially for you over 55's), but registrations are our primary goal.

Hope you are all well and looking forward to seeing or hearing from you soon. Please RSVP if you think this is something you can help us with. If you have any questions regarding the process, please ask.

Much love,

Jeff, Luann, Sydney and Madeline


Post a Comment

<< Home