Thursday, October 04, 2007

day +44

This will be a short update since the Yankees-Indians game is going on at the moment. The Yanks are behind 4-2 now in the bottom of the 3rd inning.

Today marks one month since I was discharged from Sloan following my non-myeloablative allogeneic stem cell transplant.

As usual, whenever I receive cidofovir it's a long day. My appointment was for 8:30 this morning, but they didn't get me started until about 10 as it takes time for the pharmacy to make the cocktail. And since the treatment is about 6 hours long, I didn't get home until about 7PM. So, it was a long day but I slept for perhaps most of the time as a result of the Benadryl.

Nevertheless, Ally visited me in the outpatient infusion room and updated me on the results of my recent blood tests. She said that the most recent Adenovirus blood test came back positive though the virus' strength is apparently weaker than before, so it's a good thing that I continue to receive the cidofovir. She also told me that another blood test was positive for the Epstein-Barr Virus, for which I may need to be treated. She went on to say that most of us have EBV resting dormant in our bodies, but with folks like myself with a weakened immune system this virus can flare up and show its head. But she emphasized that I shouldn't worry. These bumps that I have experienced since my discharge one month ago are quite normal for post-allo transplant patients.

I also took the opportunity to ask her about the results of Monday's PET scan. She said the only thing that showed up was scar tissue (in my mediastinum, I believe), which previous scans had revealed. So, it looks like a clean scan. I can breathe a little bit now. On Monday when I see Dr. Castro-Malaspina, I will receive the full detailed update about the scan in addition to the Adenovirus and EBV blood tests.

At about 11:30 tonight, I must take the Probenecid.

Let's go Yanks!


Comment Anonymous Sarah from up the street said...


I was talking with my mom today, who has now undergone her 4 most powerful chemo treatments. After this, she says, the cocktail gets kinder.

She wanted me to express to you her deep admiration in you and the hope that you give her. She asks me how you are, and I think she even might take a look at your blog every now and then.

Although your chemos were different, and the cancers are different, she still looks up to you because you did it AND made it through grad school. She says she can barely keep it together and she's missed many days of work.

Thank you for giving my mom such a great person to look up to. And for giving her hope on the days she's down, even if you didn't know that you were. You were. You are.

You're awesome.


7:59 PM  
Comment Blogger Duane said...

Wow. Thanks, Sarah. I'm almost speechless. That's really so generous of you and your mom to say, but really, you two give me too much credit. I'm just trying to do best that I can (considering the situation). That's really all we can do, isn't it?

I'm sure you and your family are anchors as your mother proceeds through her treatments. She's a prizefighter as well and I'm sure she'll get through this very difficult period with you and your family's loving support.

You're awesome, Sarah. Thanks for being such a wonderful friend.

With love and best wishes to you and your mother always,

Duane :)

10:54 PM  

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